T R 5/28/04
Ever wonder what you would feel like if you were told you had a terminal disease, me to. Unfortunately for me I got to wonder before and after. Definitely not the same. That feeling of safety is forever gone. That comfortable feeling you have when trying to fall off to sleep thinking about the future, is replaced with, I wonder how long I will live, will it be painful, will I be scared?
4/8/04, Stage IV lung cancer is what Im told. Tumor in my right lung, left humorus, right hip and possibly the right orbital, ( round the right eye). No early detection here, been at this stage at least 6 months prior to diagnosis.. I search out survival statistics. Average is 7to 8 months, less than a year. Whoa this aint good.
How the **** did I get lung cancer? I been runnin and hiking my ass off, doing areobic exercise, lifting weights since I quit smoking 18 years ago. Im a 52 year old physically fit dude. How the **** did I get lung cancer? Interesting to wonder how but it dont mean a lick at this point, unless, unless, I can somehow get out of this mess then I dont want to get back in it if I can help it. But first in my weird cathartic way I need to talk about how I felt upon diagnosis.
It didnt really sink in at first. Even though I was anxious about it, it is still a wait and see thing and since life and death stuff is Monday through Friday you have time to wonder while waiting to be biopsied. Deep down you dont need a biopsy, its just protocol, a necessary protocol that interferes with the speed you need to find out all the details. Lots of procedures and doctors on the front end of this type of thing.
When you get the results and are told yes it is what it is, it begins to sink in. What the **** do I do. Do I tell extended family, I mean I only have a few month to live, how could I not. I did pass on the burden and sincerely wish I had not. Family or no I took a little of their safety away. ( update, late spring 05-- they took their own safety away, mine with it.) I already knew they loved me so there was no point. So now its official and Im a startin to get scared. I am mostly worried about my wife and son and how they will get on without me. My daughter will do fine she has a good support system. I like to think I play a roll in their safety even though Im not much of a breadwinner at this stage. Oh yea I am scared for myself as well, big tuff guy split at diagnosis, the chicken.
Now at this point I am feeling weak in general, my arm is nothing short of misery Im not feeling well, havent been for 6 months and now Im beginning to get weepy at times, man what a pussy, I mean I am scared and I accept that I am but there has to be a better way of dealing with this. (Oh yea during this time there is a commercial with the song What a Wonderful World, dying or not that song will get to you. Any hoo, I start trying to learn all I can, knowledge is power and power brings control. Control is something one needs and I want control.
Alternative medicine is a thought, you know laetrile, coffee enemas, ozone therapy. Im a hard sell but I need something to believe in and since Im comfortable saying that mainstream medicine is economically driven and healing is not the primary agenda of doctors and the pharmaceutical industry would cover up honest cures in the interest of profits I have a hard road ahead. But first, I get my initial chemo treatment, ( Im a way to scared to say no to chemo, I mean maybe, what can it hurt) Not to awfully bad, no sickness, though the second night through the third day I thought I was going to die, then that feeling was replaced with just sleeping, and then I was up, slow but up. Not to bad. Back for another treatment, but noooo my immune system (blood counts) are too low, must wait for another week or so. **** Im wanting to roll on this. In the meantime Im reading all I can, finally I stumble across something that I think will complement conventional treatment, ). Maybe it is just a sugar pill but I did my research and I believe. I start taking this pill ( supplement) that is designed to stimulate the immune system and three days into it I am feeling better, that was three weeks ago, and I have had two more treatments, dug some water lines and shored up the foundation in my home. I am feeling better, not at the top of my game but better.
So am I going to die or what. At this point in time, I dont fell like Im dying, I am feeling like I can dig a ditch. You dont die when you can dig a ditch. You die when cant.
I start reading survivor stories, those are hard to read because most of them have little foot notes at the bottom. I read one survivor story that is talking about statistics. Lies, dammed lies and then there are statistics. I am now convinced that I have time to think, plan and fight. Finally in a better frame of mind.
I have an interesting footnote that will complement and clash with this web site. When I first got diagnosed I stopped cursing and gained a tremendous amount of humility and had no desire to bitch and complain, now that Im feeling better I have started to curse again. And at some point I would like to write about the 9 Nine doctors that blew me off when I was telling them about the lumps on my arm, ( unpdate late spring 05) the nine doctors didn;'t have my complete family cancer medical history, that can and does interfere with diagnosises, so maybe it wasn't all there fault there was a slow diagnosis.) I am thankful for the ninth 9th doctor who couldnt care less about the lumps on my arm and had me scheduled for surgey to fuse my neck. If it werent for him I wouldnt have gotten that chest X-Ray.
Foot Note, Ill be back
after I do my workoute
6/5/04
OK so how do I get out of this mess. Lets see, Im sorry I promise I wont ever do it again. No that wont work, though I am.
First things first, what caused the cancer.. I have my suspicions so I can only go with those at this point.
Genetics, my mother had lung cancer, and died at 53. ( Update, 5/05,I just learned an Aunt and also my Grandfather died of lung cancer as well,) She smoked up until she came out of remission at the five year survival point. I have lots of feelings on that but none positive. I will just say that in this day and age everyone must realize that smoking is an extremely unhealthy thing to do. It will gain no one anything and can and often does create missery, back to the point. I believe genetics play the largest part in this, no stopping that so no reversing that. Environment, for a few years I worked in a brothel, maintenance, it is a smoke filed, spoor and bacteria laden filthy ass place. Oh yea I also smoked for 17 or so years, two pack a day. Removed asbestos from some piping for a few days, horribly thick in the air. Fell off a ladder, 1/3/03 onto my left side, (arm) a hard fall, and at the ER complained of pain in my right hip and (right groin area, (Lymph stuff?) Lots of work around carcinogens and lots of work around dust and. never much believed diet would have a large effect on health, so my idea of a good meal was bologna sandwitches on white bread. And the other million factors.
Since I believe the thought that cancer is in all of us and is constantly being fought back and that some factor allows the cancer to get out of control, I believe that the smoke filled environment knocked my immune system down and the fall off a ladder shocked my body so badly that it got a grip and started to take me down. There are some other subtle factors with my theory that help me fit it to my conclusion. No doubt when I went into that environment I was doing ok and within a week symptoms started, and I went downhill for 6 miserable months., way downhill. Some thing changed in early March when I was out of that environment for a week, ( this wasnt the first time I noticed that I felt better when I was out of it for more that five days) and at that point I am not at the misery and confused stage, just weak and hurting, but better. Also I am diagnosed with severe cervical injuries form the fall off the ladder and I am being prepared for my neck to be welded, (disectomy). I continue to try and work in the bad environment, but its less and less, I[m just on auto pilot. On April 7 I get pre-opped for surgery and I decide that I just cant hack the work thing any longer, so I give my keys back and I am out of there. The pre-op comes back with the bad news,,,,,,,,,,,,,,. No surgery, (though the first words out of the prep woman is we usually go ahead with surgery, there is another book on that). For the three weeks I get no better, but I am maintaining and then have my first chemo. At this point because of my physically weak feeling, I am convinced I dont have a lot of time left. I dont have any faith in Chemo and I feel like I am past the mean survival time and havent a clue how to extend it. (or if I can). Lung cancer has a bad rep for survival.
First chemo, 4/28/04, other than a few days of real bad, not to bad, not feeling better but no worse, I am feeling weak, kind of wandering around the house just wanting to sleep and find relief from my body and mind. Not able to do the next chemo due to low blood stuff, have to wait.
At this point I know I need something to believe in, cause I dont believe in nothin and what is the point of continuing if you have nothing. I am going to die right quick If I dont get on the stick.
Whew, I find something I believe in. OK stop.
As said, I have been exercising for many years and havent stopped. I was still in condition, no where near peak, but able to maintain. Its hard to understand how it is difficult to stand for 5 minutes or hold the phone or paper, but I could still do a 20 minute aerobic work out and lift dumbbells.. Sometimes it was a slow hard walk to the eliptisizor but there is no option to that part of my life, I just do it. OK stop.
For whatever reason I am lucky that I have the ability to stay active. I am blessed, I dont know, why but I am. I am blessed in many areas of my life. I dont deserve it and there are many who are more deserving and have a far more successful future. And I am not necessarily a believer in your higher power. With all the humility in my heart I am thankful and my goal is to pass it on. OK continue.
As said, within three days I begin to feel better, not a lot but definitely better. It puts me in a better frame of mind. I start thinking how I might be able to boost my chances. No more chlorinated water, only spring or well water. Change my diet, get away from processed foods. Try and exercise more. No try, exercise more. Eat tomatoes and apples, make them a routine. This is hard, who eats apples.. I find a way. At this point I have had a total of three chemo treatments and have to say that I wouldnt know I had the treatments if I hadnt watched the bags empty into my arm. Every day I am feeling better I actually felt good a few days ago, of course I had to ruin that with a hike that was way to long. And I have to say I think the chemo is helping. My hip stopped hurting, I am not limping, my arm has stopped hurting, no more baths or stinky ass ben gay stuff. I have weaned off the pain pills, from a peak of 15/day, to none in a week, 6/5/04. I really dont know why I am feeling better, Im just thankful that I am.
I have read that those folk, who doctors consider bad patients, those folks who are in denial and those folks who find their own control have longer survival rates. Yea, right up my alley. At this point I am going to argue and explain my way out of this, yea thats it, but first I have to go over do it.
8/6/05
Today I find it extremely difficult to write so if I sound a little confused, allow me please, cause I am floating above the keyboard. On 8/4 I had new test. For all purposes the only thing that is still active is the tumor in my lung, however, less active it is The gateway lymph area, ( mediastinum) to the rest of my body the lymph area, ( mediastinum) that passed it to my arm and hip and ? is inactive and appears to be resolved and there is no metatastic problems in my inerds and normal normal normal in all other areas in my chest and abdomen. There has been a "complete resolution" to my arm and hip and no mention of the right orbital. How the **** did I go from How the **** did I get lung cancer? to how the **** did my arm and hip heal in 3 1/2 months. There is a list that will take credit and there is a list that I am thankfull for.
Since the onset I have been working for my wife and my job for the last 100 days has been to survive, she wanted the product and I think I might deliver. So now I need a new job and that is to pass on my good fortune, not sure how but I'll work on it. I'll start by thanking those that prayed for me.
So in conclusion I am again puttin all my eggs in one basket, of course leaving room for when I hack that tumor up to throw it in with the eggs
Foot note, please don't allow my arrogance to overshadow the humility in my undeserving soul.
8/24/04
I re-read my write and its amazing how much different I feel about what aided the cancer and what is helping me get past it..
I have read tons of stuff about cancer and learned a bunch. The short answer to my questions are , change. Insanity is doing the same thing over and over and getting the same results, No change, no change. My wonderings as to how & why I got and was being taken down by cancer is answered by one of the many changes I made,( which includes treatment) most of which I have already spoken of. However the one thing that I placed the least emphasis on was diet. I have always felt that meat was not necessarily good for you. I now feel that meat is not necessarily good for you. I was always told that fruits and vegetables are good for you. I now feel that fruits and vegetables are good for you. I never gave a thought about the detriment of cooking food and how it effects the enzyme thing within digestion. I now believe that eating nothing more than natural foods, fruits and vegetables, uncooked, are the key to good health and if you ate nothing more than natural foods, fruits and vegetables, uncooked, you would most likely thrive. I base this new found belief on my lifes experience, my reasoning,, my logic and http://www.soilandhealth.org/02/0201hyglibcat/020121horne/020121toc.html and http://www.soilandhealth.org/02/0201hyglibcat/020122horne.21stcentury/020122toc.html in that order and my transformation from, ill heath to best conditiioning and fitness, in my lifetime, (sans USMC boot camp, but there is still time.
This book is full of information, it is not a follow the leader book, it is an indictment on everything but a natural approach. For me it was right up my alley and it wasnt trying to sell me anything, The author comes across as someone who is trying to pass information and not opinion.
Now after commenting on the meat, and uncooked thing. Moderation in all things. Think of it as and on a curve, indulgences are sometimes tolerated in moderation. Indulgence as a way of life will kill you. Personally Im shooting for what I believe to be the best success. Believing that I most likely will justify some indulgence I know I will stay fairly on track because I thought and think if I do not, the Alternative is the Alternative
The other thing that I feel helped is exercise. No doubt a fit body is far healthier than an unfit body but I now believe the exercise was what helped me get to a good feeling stages, though it probably wouldnt sustain my life had I not changed diet and a few other things along with it. My understanding is exercise will create and help continue, necessary and good blood circulation, but too much fats and such will still build in the arteries. Got to feed the machine a good product.
Realizing it aint over till its over, I will keep on searching for answers but in the meantime,,,,,,,,,,,,,
One more, I base much of my change of thought and good fortune on diet, ( and other things?) through http://www.soilandhealth.org/02/0201hyglibcat/020121horne/020121toc.html and
http://www.soilandhealth.org/02/0201hyglibcat/020122horne.21stcentury/020122toc.html were what tipped the scales for me, literaly, 70# in a year.
And also the fact that today I am healthy, yesterday I was not..
12/01/04
Today I am bald, healthy but bald. Its a new chemo thing. That hack the thing into a basket of eggs has bitten me in the ass. A little progression but progression none the less.
Things to do today. Utilize the arrogance and remember last spring.
Things to do tomorrow. Go on a new car lot, remove my knit cap, frown and **** with the salesmen
1/18/05
New scans, the arrogance, and other stuff, has paid off. Things are a little better, only a little but better none the less. Actually the tumor is only a little smaller, but I aint worried bout no tumor, its that lymph stuff that bothers me, but since it is not viewable this time it be backing up.
Even hangin on to a few eyebrows. What a ride!
It aint over till its over.
4/2/05 All the previous and a little better. I really do feel that water played a part. I am lucky that I live in an area that I have the ability to get natural water. I often wonder if I had not had the ease of getting spring or well water would I have found a way. Yes!! I do believe I would have, & only on a hunch that it would be benificial. Since I wrote the book for the purpose of passing on my good fortune, I have to, at least talk of options.
Get several five gallon jugs get in the car, and go find some. When it is realized that natural water is beter than water with clorine, the powers to be will figure out something. If you want to see the price of water jump, get some water.
5/8/05 All the previous and a little better. Been a year now, I have went from almost dead, to now. I have changed my thoughts considerably. I no longer care much for smokers. They create problems for themselves and me and mine, they will argue their right to smoke in the face of harming those who do not or are about to, all in the name of , "I need a cigarette". The stuff I've seen, you have no idea.
I smoked and when I smoked I was an undisiplined person who only cared about satisfying a craving. When I stopped smoking I not only left cigarettes behind. Smokers
6/22/05 Saying the words, "its never ending" is not at all like living it.
Funny how a change in time and status changes thoughts. Think about this. In keeping with my first choice/phrasing of words, What the **** do I do now!
7/22/05
7/22/05 uh oh! A little update here. Got a few brain tumors happening. This brain thing is literally a new ride, Im walking like I was when I drank, and to think I used to work at walking sideways. Forward and to the left. This is a usual metastatic path. Brain and long bones ( humorus, arm), and pelvic area, hip) adrenal glands, (Kidney area) liver, prostate and a few million other areas, somewhat in that order are most often affected, so Im following a normal path and one that previous family members have had, so its somewhat expected if not just understood. I( Just have to throw this in, it wasnt expected until I recently found out other family members had lung cancer, far late to use in a proactive fashion but thats another story. But to make my feelings clear if the reader has any medical secretes they have responsibility to pass that information along as difficult as that may be. The ramifications of not doing so is at most deadly, and on to non repairable.
The good news is I now I know **** *** **** to do. Complacency is gone, a good thing! Time to get my mind right, gather some more arrogance and say bring it on. Full brain radiation, Zap ****** ****** Zap. To many, two large and many very small mets to do a surgical or pinpoint radiation thing, so its full brain and with a minor amount of pre meds I responded well which means, the radiation should cause a beneficial response. The head hair Ive come to receive since stopping chemo, will be gone again, oh well, the manley beard will be staying as will be the eyebrows, and nose hair.
One more thing, if you are in need of info, check out http://www.cancerrehabilitation.com/ its the softer side of cancer talk and more designed pass on info with less venting and loud talk. This site may cause the reader think I'm not seriouse, this is my life and I'm very serious and (But I started here, so,,,,,
One more, as far as a tumor muddling ones mind that is dependant on tumor placement, Im OK there. The ranting and ravings on this site is a cultural, environmental, sociological family thing, one that I need to vent on, in my weird cathartic way, AKA I was this way pre brain mets, however this site violates step 9., time to move on. http://www.cancerrehabilitation.com/
Tick Tock
Foot note to be placed here in years and ?